Event Details

Join us for the second installment of our six-part workshop series within the Center's Patient-Centered Economic Impacts Project. This workshop will delve into the significant time costs associated with healthcare, such as delayed treatments and lost opportunities for education and income that affect patients and caregivers.


During this interactive session, we will address key questions to deepen our understanding of the economic burdens in healthcare:

  1. What economic impacts are most felt as time costs by patients and caregivers?
  2. What aspects of time are most important to measure?
  3. How do these time costs differ across various ages, demographics, and socioeconomic backgrounds?


The workshop is open to those interested in making health research more patient-centered, particularly researchers interested in the economic impacts of disease, patients, family members, and caregivers eager to participate in or inform research, and funders of healthcare research.


Registration closes at 12 PM ET Wednesday, November 13.


Please contact Ushma Patel if you have any questions.

Speakers

  • Tina Aswani-Omprakash (President at South Asian IBD Alliance)

    Tina Aswani-Omprakash

    President at South Asian IBD Alliance

    Tina Aswani-Omprakash, MPH is a multi award-winning women’s health advocate based out of New York City. Tina pivoted from Wall Street to a path of impactful change in healthcare after her own Crohn’s disease diagnosis and life-saving ostomy surgery. Due to the stigmas and disparities she faced in her journey, she started a blog and social media advocacy platform called Own Your Crohn’s, which went viral across patient communities and eventually led to her co-founding South Asian IBD Alliance (SAIA), a patient-clinician led non-profit organization working to improve education and awareness in the growing South Asian IBD community.

    Tina has been featured in The New York Times, in Time Magazine, on the cover of American College of Gastroenterology Magazine and in Gastroenterology & Endoscopy News as well as Health Magazine for her trailblazing advocacy work. Tina has also spoken at multiple leading medical, clinical research, and patient conferences worldwide. She has co-authored and led research studies in many prominent medical journals (JAMA, The Lancet, Gastroenterology, Inflammatory Bowel Diseases, etc.)

    Very Well Health presented Tina with the Health Impact Award and Social Health Network awarded her the Revolutionary Researcher Award in the patient advocacy space in 2023. The American College of Gastroenterology (ACG) awarded Tina the Best Patient Advocacy Award in 2022 and the Crohn’s & Colitis Foundation recognized Tina in 2021 for her phenomenal leadership and powerful impact on the IBD community with the Above & Beyond Volunteer Award. Tina and South Asian IBD Alliance’s patient advocacy arm, IBDesis, were both awarded the Healio Gastroenterology Disruptive Innovator Award in 2019 and 2023, respectively, for moving the needle on GI care for patients. 

    Tina is committed to embodying the change she wishes to see in the world and she does that every day by advocating for patients like herself.

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  • Beth Gore (Chief Executive Officer at Oley Foundation)

    Beth Gore

    Chief Executive Officer at Oley Foundation

    Beth Gore, PhD, is a national patient safety advocate, author and speaker who represents patients through patient associations, serving on boards, and being a voice of the patient on national committees and task forces with over a decade of direct vascular access and parenteral and enteral focus. She is the current Executive Director of The Oley Foundation, a home nutrition therapy community and advocacy Group and has a PhD in Training. Beth and her husband Dan life in Tampa, Florida with their six children who are adopted with special needs, including a son who lives with a central line for lifetime nutrition support.

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  • Casey Quinn (Senior Advisor, Patient-Centered Economic Outcomes at Patient-Centered Outcomes Research Institute)

    Casey Quinn

    Senior Advisor, Patient-Centered Economic Outcomes at Patient-Centered Outcomes Research Institute

    Casey Quinn, PhD, is the Senior Advisor for Patient-Centered Economic Outcomes. He supports efforts to capture data on the full range of clinical and patient-centered outcomes, including potential burdens and economic impacts of interventions studied in PCORI-funded research, as clarified by PCORI’s reauthorizing law and the Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research.

    Casey’s background includes health economics, econometrics, epidemiology, and population health. He received his PhD in Health Economics from the University of York. Before joining PCORI, Casey served as the Chief Research Officer at a UK-based, patient-centered research organization, Vitaccess, and as a senior adviser with the Center for Biomedical System Design at Tufts Medical Center’s Institute for Clinical Research and Health Policy Studies. His other work has included advisory roles with payers both in the US, with New York State Medicaid, and in the UK, with the National Institute for Health and Care Excellence.

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